Palliative Care: A Guide for Families
When someone you love is living with a serious or life-limiting illness, there can be a lot to understand. Palliative care is about more than treating an illness. It is about helping someone live as comfortably and fully as possible, while supporting the people around them too.
Palliative care can be provided at different stages of an illness and in different settings, including someone’s home, a care home, hospital or hospice. It does not automatically mean that someone is dying or that treatment has stopped.
As an illness progresses, however, families may face new questions. What happens when treatment changes? What might the final days look like? What are anticipatory medicines? What is a syringe driver? What can you do for someone who is dying? And what decisions should be made in advance?
Explore the Palliative Care Guide
Understanding Palliative Care
What palliative care is, who can receive it, where it is provided and what it means for families.
Guide 2When Care Changes
Understand why treatment may change as an illness progresses and why the focus may move towards comfort and quality of life.
Guide 3What Happens Towards the End of Life?
Understand changes that may happen during the final weeks, days and hours of life, including changes in breathing, eating, sleeping and responsiveness.
Guide 4Medicines & Keeping Someone Comfortable
Learn about anticipatory medicines, common end-of-life medicines, stat doses and syringe drivers, and how they are used to maintain comfort.
Guide 5Being There for Your Relative
Practical and reassuring guidance about spending time with someone who is approaching the end of life.
Guide 6Looking After You and Your Family
Palliative care is also about supporting families. Understand emotional, practical and caring support during this difficult time.
Guide 7Planning, Decisions & Afterwards
Understand advance care planning, ADRT, Lasting Power of Attorney, DNACPR, ReSPECT and what happens after someone dies.
It may mean that the focus of care has changed — from treating or controlling an underlying illness to prioritising comfort, dignity, symptom management and quality of life.
When someone needs more support
Palliative care can form part of a wider care journey. As someone’s needs change, families may also need to think about whether care at home remains appropriate or whether a different care setting would provide the support they need.
Carentis provides separate guidance about care at home and when it may be time to consider a care home .
Understanding care and funding
For some people with significant health needs, NHS funding may also form part of the wider care picture.
Carentis provides guidance about NHS Continuing Healthcare and NHS Fast Track funding .
And remember — families need care too
Supporting someone with a serious illness can be physically and emotionally exhausting. You may need information, practical help, reassurance or simply someone to explain what is happening.
If you are caring for someone and need a break, Carentis also provides guidance about taking a break from caring and respite care .
Start with the guide that feels most relevant
You do not need to read everything at once. Start with the question you are trying to answer today and come back to the rest when you need it.
Start with Understanding Palliative Care →